Here in the hotel

So tomorrow is Reiko's Port A Cath removal surgery and then they will put it somewhere else in his chest. So it has been a long day today. I did not sleep well last night even though Derek got up with Reiko so I could get some sleep, I had to much on my mind and I am sure the nap I had earlier with Kai did not help me any. I was thinking about all the normal worries of the doctors handling him while I am out of the room, the IV, making up his signs for his car seat so people don't touch him, thinking about my eating this week and how hard it will be not to binge eat everyday..ughh...but eventually I got alittle bit of sleep and then Kai woke me up at 6am coming to my bed, so then everything I had thought about most of the night went right back into my head, feel asleep and then Derek came in and said "your turn!" ohh yay! lol. So I spent time with Kai this morning cuddling and playing together, then I got him dressed and dropped him off at school. When I got back we loaded all the bags, which you would swear we were leaving for months with everything I brought lol, and then we headed to London. We got here aroung 1230ish and picked up the Ronald McDonald House letter for the Best Western and headed to the supermarket to get me some healthy foods to last the week. I naively thought the healthy whole wheat pasta with tomatoes, basil, oregano and peppers would last me all week, nope, went through most of it today. This time we brought a toaster oven to the hotel since our room has no microwave or anything to cook with, at least now I can make something here for myself. Reiko and I had our pre-admin appt this afternoon and they were a half hour late, but I saw the anethesiologist(sp??) and he just asked us questions, the normal stuff. Reiko can have formula up to 730am then he can have water til 1030 then he has to fast from there, and his surgery is at 130, thankfully it wont be to hard on the little man.

I was shocked and saddened to see that a fellow OI mom who also had severe OI as well has passed away today, I am not sure of the circumstances, but her husband just said he passed away at noon. She leaves behind her husband and a young daughter, possibly Kai's age. Ewa was from Poland and only 33 years old, 9 years older than me. How unfortuante and unfair.

I miss my husband, even thought it was just this afternoon that he drove away from the hospital, I miss him. I love being around him, we dont even have to talk and I love being with him. My heart aches when we are apart, but I know that in 5 days we will see eachother and that wonderful moment will make it all worth it. And of course I miss my KaiKai! It is so quiet and boring without him around and he says the cutest things and is such a momma's boy now that I crave this cuddling time together.

But I am so thankful to have such wonderful healthcare for Reiko and that they do what they can to get him in as fast as possible and always have his best interest at heart. I love Canada.

I really am bummed about missing both my workout classes this week, I look forward to them all week and of course this week I miss both of them, and in 2 weeks I miss both again since Reiko and I will be in Montreal then. But all the working out is really helping, I started running 2 days ago and last night I could not believe how great I did! After running/walking 2 mins intervals for a half hour I then ran 10 minutes straight! I cannot believe I did that! My right foot is very sore today though, so I took the day off! Tomorrow night if I am not to exhausted I will use the gym here and do another run! YaY for positive results!

Ok bedtime now! I will update you all tomorrow night.

xoxoxo

Hi from he hotel room!

Jessica