Thursday, December 30, 2010

Great days!

So tonight I had my cheat moments, since everything will be closed New Years day! I didn't over do it, I started this morning off as usual, since I didn't know we were going to change our cheat day to today, So I had 14 of my 27 pts, then for supper I had 2 slices stuffed crust pizza which were 10pts each, a chocolate silk truffle and the cream from a cream puff from culberts bakery! They are seriously the best bakery ever! Other than today, I have been doing great with the diet, and felt better then ever! I have lost 3lbs, probably water weight, but still it's 3lbs! I haven't been nearly as tired or lazy feeling as before, although I was alittle tired today, but that was just from not a good night of sleep. I have been working out and really enjoying myself. I think this weight watchers diet is the best thing I have ever done for myself.

It was a bit of a tiring day with Kai, lots of tantrums and such, it seems to go 1 good day, then 10 bad days, then 1 okay day, then annother 3 bad days, then 2 really great days...he is a very moody boy, but he has alot of his plate with everything he deals with in this family, so its undestandable. Reiko has been in a great mood lately, and really funny, he is starting to get mad if something of his falls or he doesn't get what he wants, he is truly turning into a 9 month old now...lol, but its so cute and he knows its funny when he does it. I think his pneumonia has pretty much cleared up, only a few more days of antibiotics and then he should be good. He is also due next week to get his port flushed, it will be the first time since he has had it that he actually waited the full 4 weeks to get it flushed, usually he is admitted into the hospital sick and they just do it then, so this is nice, although now we are scrambling to find someone to do it..fun. Does it ever feel like you never finish cleaning? that no matter what you do there is not enough room for everything and nothing ever stays clean, especially with children...it can be so frustrating! But Tonight is respite care! whoot whoot!! hopefully Reiko has a good night with Ruth. Ok time to go. take care! xoxo

Tuesday, December 28, 2010

Another good day

Last night we had Respite care, thankgoodness! Reiko was up all night for her crying, but it didn't mean I got any sleep because Kai came into my room at 130 after having a tantrum on the stairs, all confused and half asleep, then he slept with me but that consisted of him having a coughing attack every 5 minutes and him kicking me all night, it was a fun night! lol. But thankfully once Derek got home from work he said he was feeling good, so I went to bed! When I woke up at 1, Derek went down for a nap and then Kai, Reiko and I hung out downstairs and before I knew it they were both passed out! Easy afternoon to say the least! At 3:30 today Kai, Reiko and I got our haircut by one of my friends named Naomi, Kai cried the whole time which is very unlike him since he has had about 20 haircuts, but I had just woken him up to go there and he wanted me and didn't like being bugged, but once Naomi's son Mateo woke up he was happy and they started playing after his haircut was done! Reiko did good, he has really gotten used to his head control now so he was moving around being all curious, man it looks so different short, it looks good, and I am sure he will enjoy not sweating his butt off with all that hair! Next I got my haircut and I really liked the work she did,  she did everything I asked and it turned out beautiful! Usually I go to a hair salon and never leave fully satisfied but tonight I left Naomi's house very happy with all our haircuts! Derek loved them as well!!
This was Reiko's 4th haircut!



Once we got home we had some supper and Derek went to the gym after putting Reiko to sleep, Kai was so upset that he wasn't allowed to go to the gym with daddy tonight, but he got excited when he found out I was about to do some exercising here, so we went to youtube and I did the windsor pilates 20 minute workout, Kai sat on my chest for most of it, which made it even more challenging, his way of helping me I guess lol and then I did about 20 minutes of an aerobics workout I found on youtube as well, Kai was bored at that point and was playing with blocks! I stuck to my Weight Watchers perfectly today and even had a spare point left over, which is good since I went over 3 points yesturday. I had a bowl of cherrios with banana for breakfast, 2 hard boiled eggs and a big salad for lunch, supper was 1 slice ham & turkey with mixed vegetables, then for snacks I had cut up cucummber and peppers with 1/2 cup of tuna and last snack was another bowl of cherrios without the banana. Had all my 8 glasses of water and my poor bladder is feeling it lol. Derek is being a wonderful support though and helping me through this! Umm, not much else to say really lol, Reiko had a good day, lots of naps cause of his sleeping last night, and Kai had a good day as well, before bed we turned out the lights, got a flashlight and read one of his CARS books and it showed different shadows, he loved it! He went to bed easy tonight after our nightly songs, which still is including Rudolph the red nosed reindeer lol.Ok well bedtime for me. Night Night!

Monday, December 27, 2010

A new start

Today is the day, it is all beginning, my new life of health. Yes so many people say this every year, saying this will be the year, but it will be..I am determined, I have inspiration and I have motivation! Yesturday I bought a pair of size 27 skinny jeans, they are alittle stretchy so probably a size 28/29 in normal jeans, but still, I love them, I have a size 31 in them right now and wear them everyday, so now I have to hang my size 27's on my door and have them staring back at me everyday to remind me of what I WILL accomplish! Ok I just tried on my size 27 jeans, yea they won't fit on my ass or even close to doing up, and a real 27's would not even go up one leg lol..soo there it is, my goal right there. Ultimately I would like to lose 60lbs, which would bring me to 125lbs, but I am thinking I would be happy anywhere between there and 135lbs. But today I look at it as in the first 5 lbs, then I will look beyond that once I hit those 5lbs. I did wake up weak and needed a quick wakeup so I ate 2 peanut butter bars about 1x1 inch, then I did the right thing and through the rest of christmas goodies in the garbage so there will be no more temptation. I will be weak sometimes, but I will always be incredibly strong and lose this weight for my health and myself..after that it will be for my boys.

Ok so now onto life, yesturday was boxing day, Derek and I did some browsing at the stores to see the deals, not to much honestly, we bought batteries since we always need them, and other essentials, but really there was nothing exciting on sale. Then we headed out to my mother in laws for our christmas supper, it was a delishious meal! Reiko had a yogurt pretzel yesturday and he was so excited and happy eating it, he even ate some mashed potatoes and, he had a great day, was in a great mood and was loving all the attention from his uncles and Oma. Kai spent the night with Oma, giving us a break from a very hard day full of tantrums starting at 8am. He cried when I left telling me he wanted to stay at Oma's but wanted me to stay too, it broke my heart to leave, but I am sure he forgot about me within a few minutes,  he always does. My only complaint was the table talk that my brother in laws and sister in laws boyfriend were having, I don't like the things they talk about, and have Kai hearing to too. hopefully the next time will be better. When we got home last night I had to go to sleep, the night before was awful, both boys got up about 4 or 5 times, so I went to bed at 7 last night, Reiko woke up a few times last night, but still slept til 7am this morning, so I had almost 12hrs sleep and I cannot complain! Right now Reiko is half asleep beside me, shaking his head side to side every few minutes, I am about to eat so lets hope he will wait, oh nevermind he just woke up lol. at least he is smiling! Ok today is going to be a relaxing day, I will do some pilates and eat healthy! Day 1 baby!

Saturday, December 25, 2010

Merry Christmas!

Merry Christmas everyone!! Yesturday was a good day, for the most part. We went to my parent's place for brunch around 11 and the roads were crazy busy, we had a nice french toast breakfast and then opened presents, Kai enjoyed all his gifts, and then it was time for me to put Reiko down for a nap, I was rubbing his belly since he likes that, when all of a sudden I felt a pop, and then the dreaded scream, he turned red, then white and blue lips, he screamed until the codiene kicked in, I am assuming it was a rib since he is still moving all his long limbs. I don't why or what happened, but unfortunately I think we have another fracture to add to the list. We have been giving him advil every 6 hours to help with the pain. In better news though his pneumonia seems to be clearing up, he slept much better last night for Derek, I slept in the basement(we are at my mother in laws) and had a good 8 hour sleep myself, Reiko slept really well, and then we all woke up at 530am to open gifts..I guess Kai had been stiring since 430 am in Oma's bed, so excited for Christmas. Kai was utterly spoiled lol and we all got wonderful gifts from Santa. Santa even came to visit Kai last night, while daddy just so happened to be out, poor daddy missed seeing santa..Kai was shy, but very excited to see Santa and he told Santa how we had put out the reindeer food and that there were cookies and chocolate milk for him. Later Santa went and visited Kai's cousin's, the twins who are the same age as him, a couple days younger actually and they were excited but shy as well, but their 11 month old sister was not happy at all to see him and made it well known lol. Kai went to bed at 9, as did I. Today we have been taking it easy, we napped this morning, and Derek made us some breakfast. Reiko has been "playing" with Kai's keyboard he got for christmas, and Kai's Mr.Potatoe head hand lol, all in all a good holiday. We are going to my parent's for supper tonight and then Derek and I will stuff ourselves full of chocolate before out big diet starts monday lol. Merry Christmas everyone. Thank you for giving us such a blessed year of love and support!! xoxoxooxx

Friday, December 24, 2010

Merry Christmas Eve!!

So I may get my Christmas wish! Reiko does have pneumonia but if we can get him to keep down his meds then there is no need for him to be put into sick kids again! Fingers crossed everyone! Sadly we can't get together with my sister and her family today to exchange gifts, my poor neice has mono, she is only 5 so no kissing people lol, and Kai likes to hang right off her, so we decided it was not worth it for Reiko to possibly pick up the mono too, it could be deadly if he got it, especially on top of the pneumonia. But hopefully we can still get together sometime after the new years and I hope my Shelster feels better soon, mono is awful, from what I have heard. So at 11 we are headed to my parents house for a brunch and to open up the presents, I cannot wait to see Kai's face when he open's his presents, especially tomorrow! Thankfully we had respite care last night, especially since Reiko did not really sleep for her either, so that would have been 4 straight days of little to no sleep, thank you Respite! Right now the big boys are sleeping and Reiko and I are downstairs hanging out on the floor, while he plays with his toys, he is such a cutie! Kai has a fever, and came to our room about 430, handed me his cup of water then when wanted it back right away, then I put him back to bed, within 2 minutes he was crawling into our bed again, this time I didn't care, and it was so precious because he came up to me and gave me a sweet little kiss on my arm and said "I love you mama" it just melted my heart. I am so lucky! I don't know if I wrote this yesturday but Kai woke up the other night at like 3am and wanted me to read him a story and he was wide awake, I was like what the hecck?? he has never done that before lol, it made me laugh in the morning, but not at the moment it was happening lol. I downloaded the windows 7 cloud last night and it is so cool what it can do to pictures! I love it!!! ok, time to get ready and then give Reiko his med. Merry Christmas Eve everyone!! xoxo

Thursday, December 23, 2010

Looking worse

Another sleepless night with Reiko and Kai, but I put Kai to bed with daddy and I haven't heard him since. Reiko has not slept more than an hour at a time and is very cranky. He has vomitted 3 times tonight, I just have him a gravol suppository and I really hope that helps the nausea. He has a low grade fever still and his breathing is raspy, which means upper airway at least. I keep giving him saline drops, and sucking out his nose, giving him a puffer treatment and trying to keep him happy..with little success. Of course now that I am on here he is having a nice little nap, but I know the minute I lay down, he will be back up crying, looking at me to make him feel better. So now that I have cleaned up vomit 3 times in one night, and I know his body, I am starting to assume that the pneumonia is coming back and we will eventually be in the hospital again. This Sucks!! I do not understand how every 2 weeks his pneumonia comes back and gets him so bad...on Monday his pediatrician said his lungs sounded excellent, not a sound in there, but I know today that there will be the rattles,the wheezing etc...Here is where I start to wonder about God. I am not religious, but at the same time I am afraid to say I don't believe in God, in case there is one, so I am assuming I do believe. But I question what the f*** he was thinking giving a baby or anyone this kind of disease. But I just keep praying that he takes care of my Reiko and my family and hope that if there is a God, he will eventually hear my prayers. The worst thing about this disease,,,it has completely taken over our lives...it is all we talk about, think about, worry about, it is all we are now a days. I want to look at Reiko as more than the baby with brittle bones, but right now it doesn't seem possible, when our lives are all encompassed by this horrible thing. I guess if I don't have an update tonight or something you will know Reiko has been sent to sick kids in London. Oh and just in case there is a God, please send him some prayers to send some help our way.

Wednesday, December 22, 2010

Zumba and reflections...

After a 2 week hiatus we had Zumba again, unfortunately for the last time until January, that is if we can afford for me to attend another 6 weeks of classes. It is alot of fun and a good hard workout. My teacher Stacey is a ball of energy and such a positive wonderful person. I was talking to Stacey and some of the other ladies tonight about Reiko, and they just kept saying how they don't know how I do it, but in all honesty, how could I choose not to? We either had the choice to have this wonderful little child in our lives or not, but we were in love with him the day we found out we were expecting. Taking care of him is what I am here for, and I am lucky for it. Not for the disease of course, because I do hate every part of this disease, I think it is terribly unfair for him to have this, but he is worth it, he is my baby, and he makes me a better person everyday. It got me thinking on the way home, you know the 3 second walk from my house to the dance studio lol, but I was thinking how far I had come in accepting him disease. I will take you back to Reiko at 4 days old, Derek and I were staying at a hotel in London courtesy of the Ronald McDonald House, Derek told me he had saw a sign for parent support group for that evening at the hospital, since I was going to visit Reiko anyways he said I should attend the meeting. At that time I barely knew anything about OI, all I knew was it was breaking my babies bones. In the support group it was about 5 families, everybody else was there for their premature babies, even the books we were given were for parents of premature babies, that was just one hard part, realising that I was alone in what I was going through..then we got to talking and one man inadvertantly said regarding how the nurses handled the babies "We just have to remember, we can't break out babies". That was it, that was the straw...I ran out crying into the hallway of the hospital, crying so loud but barely able to contain myself, one of the co-ordinators came out apologizing profusley for the mans words, I knew I could not be angry with him, he had his own set of problems, a baby born at 25 weeks has to be extremely hard too. I went to a quiet room to bawl my eyes out some more, then mustered up some courage to go back to the class, I was embarrassed but realised that the other parents had been in vulnerable situations themselves. When I went back in, not even 5 minutes later the same man said the same thing again..needless to say, I could not wait for the program to end. I never went back to the another program, I really didn't feel like I could relate to them, even with their children in the same NICU. The next day, I phoned my mother and cryed harder than I ever have in my life, I didn't know how to go on, how to live and how to be a mother to Reiko or Kai, I felt like I was a horrible mother to Kai because he was being sent back and forth from grandparents for most of the 5 weeks Reiko was in the hospital, mainly because I could not deal with my anger/heartache and his being a normal 2 year old. I banged my fists on the tables all the while just sobbing loudly to my mother on the phone over an hour away, she offered that second to come up and help me, she wanted to be there for me, and eventually we ended the phone call, me knowing that I just had to get through that day ahead of me and my mother heartbroken over hearing her youngest child completely lost and sad. Now things are getting easier, I don't cry hardly ever, although I know there will always be alot more, and I can talk about it to other people, maybe in hopes that when they see their children that night they may hug them alittle more tighter and realise how lucky they are to not watch their children hurt all the time, get sick all the time or worry about what will happen not only the next day but within the next minutes.

Poor Kai has a nasty little cough/cold that seems to be keeping him up, he is crying alittle bit and just wanting his mommy..I think even with Derek home tonight it will be along night for both of us. Ok enough ramblings.. good night all

Hoping this isn't the beginning

Reiko is sick again, so far a fever and vomitted twicce today. He has been super grumpy and just not himself. He kept me up all night last night, he pretty much did not sleep, so that goes the same for me. So of course he has been sleeping the day away today, but hopefully it will make him feel better. Derek brought Kai to daycare this morning and then I caught up on some sleep this morning, not nearly enough, but enough to get me through the day. Derek is off until christmas night now, which is a nice break. Kai woke up last night and saw me sleeping on the couch since the only place Reiko would try to sleep was his swing, Kai then decided to try and sleep with me, but the couch is to small, so I pulled out his spider man couch and he slept on that on the floor, but not without putting up a fight about wanting to watch cartoons...ughh, it was not fun at all. Reiko then stayed awake all morning, until he vomitted twice at 530am...after a bath and a small feeding he went to sleep for 30mins, to say I was exhausted this morning was an understatement. I know he is getting sick when he does not sleep through the night at all, he usually sleeps for at least 5 hours straight then gets up, but if he is getting pneumonia he can't seem to sleep. But he just woke up from a nap and is smiling at me, the first smiles of the day, so hopefully that is a sign he is feeling better. I would hate to have to miss out of Christmas, but we will deal with whatever happens. Alot of the baking is gone that we made yesturday lol, derek ate all the haystacks and I have eaten all the shortbread..I LOVE SHORTBREAD!! But thankfully the peanut butter squares are so rich you can't eat them all in one night, or else they would be gone as well lol. Kai had a great day at daycare today, and brought home some reindeer food for christmas! He is soo excited! I can't believe christmas is 3 days away now! Wheww! This year is so close to being over, THANKFULLY!! This year has been awful, except for Reiko of course. I must go, but I will be back another day. Take care everyone!

Tuesday, December 21, 2010

Christmas Baking!! Success!!

Today was mom and I's annual christmas baking day! Last year was not a good year, we burned I think everything and didn't leave with anything I think, or that was the year before, last year my sister and I got together to bake cause mom was working all the time, those turned out pretty good. Anyways, mom and dad got a new stove for christmas and baking was a breeze today! But we did have a few no-bake items too. We made peanut butter bars, chocolate rice crispy squares, homemade shortbread with homemade strawberry jam filling, chocolate chip cookies and oatmeal/walnut haystacks! Everything turned out great, except the first batch of rice crispy squares, trying to figure out how the elements work on the new stove. needless to say, high is very very high lol. Kai had an awesome time decorating a gingerbread house with Grandpa, they took pictures so on friday I will post those, they are cute! Kai would put 1 peice of candy on the house and eat 3 for himself lol, then after that was done grandpa kept him busy by play fighting for a few hours. Reiko did not want me to put him down today at all, and when I did he was having his pain cry..I tried advil which didn't seem to do anything for him, then after his nap which he fought for about an hour I gave him some codiene because he generally seemed like he was in pain. I am wondering if it is another crushed vertebrae since he is moving all his long bones. It's so hard to tell at this age, he just cries and I know it means pain, but I have no idea where somedays. then again it might just be the chronic bone pain too and not a break. I  don't know, I wish I did though. We successfully finished all our baking at 1 and we came home with a stuffed crust pizza for daddy, he wants to get all his cravings out before our diet next week starts. I came home and had a nice nap, I was tired from the last few days of being busy. Reiko was also very cranky from the RSV shot yesturday and has a bit of a fever today to go with the pain he is in. Kai napped with me when we got home cause he is fighting a nice cold which he is giving me,m I have been sneezing all day, yay, just before christmas! The little man has been sneaking into my bed at night lately, so hopefully tonight he will stay in his own bed. I used to be super strict with him being in his own bed, but now with the way Reiko sleeps, I would much rather not fight him and let us both get the sleep we need. Reiko went to bed early tonight, tried to keep him up til 6, but that was impossible, he was super cranky and even Kai could't cheer him up. He has already been up once, was warm so I gave him some tylenol, he went back to bed, hopefully he will not be up all night. I am trying to keep Derek from eating Kai's stuffed crust pizza right now, kai eats slowly and daddy see's his favourite pizza just sitting there, haha, lets see who will win this one! Ok time to spend some time with my boys...I guess lol.
night night

Monday, December 20, 2010

Busy Christmas Shoppers!

Whew!! Just got back from Reiko's doctor appointment for his second RSV shot in London and wow was it ever busy there. I find it rediculous that so many people put off shopping knowing that the week before will be absolutely nuts! I got to spend some time with my best friend Tracey today, I saw her new place with her boyfriend Casey and, I fed Reiko after an hours drive and then we headed to the mall just so I could get Derek his last gift, we have already finished but I wanted to get him one more gift, a video game that he has wanted for months but kept putting off. Then Tracey bought Kai a Rudolph the Red Nosed Reindeer book that you record your voice on, we did the book together, along with Reiko screaming in the background since we did it in the car before his appointment, then when I gave it to him at home it refused to work...that sucks, he was very excited for it as well as Tracey. Now I am about to have some breakfast for supper from my wonderful husband and then get ready for Reiko's respite care tonight. Sandy comes from 12-7am, which is a nice break. Reiko weighed 13lbs 3 oz today, and was 22 1/4inches long, he is steadily gaining weight now, I am assuming from the baby cereal he has everyday. His lungs sounded clear today, which is awesome, hopefully that means no more pneumonia for a long time! ok, time to eat. good night!

Sunday, December 19, 2010

Finally the Chaos is back!



Kai spent the weekend at his Oma's and we finally picked him up today, this weekend was utterly boring, almost unbearably boring even with Reiko around, I just have gotten used to the noise and chaos that is always following Kai around. It was awesome when he saw me, he ran up and gave me the biggest hug and kisses, said he missed me and wanted to cuddle, he had a great time with his Oma tobogganing with his cousins the same age as him and was worn out from all the fun. We had picked up Kai at one of Derek's uncles house and his daughter and her husband were up visiting from the states, and her husband just so happens to be a geneticist! What are the odds? So he knew all about Reiko's mutation in the collagen gene! So we had a nice little visit full of food, Kai was secretly trying to put little candies in his pocket, thinking no one would be the wiser, luckily his uncle did not like the candies anyways so everyone just laughed, and when he did get caught he said that he was putting some in his pocket for mommy and daddy, we have yet to see these candies haha. We came home and after Kai pretending to fall asleep in the car ride home while laughing, he finally did pass out, but once we got home 10 minutes later he was wide awake and looking for the stuffed Santa I had hidden for him. Today I gave him the hint that "Santa likes to read" which he eventually realised he was with his books! I love hiding Santa everyday for him and he has a blast finding it! I went for a nap this afternoon which was really just disappointing, woke up at 4:45 to Kai telling mommy to wake up! Came down had some leftover roastbeef and now Kai, Reiko and I are watching Descpicable Me, which Derek and I had watched last night. It was a good day today, and best of all  no hospital visits, in almost 2 weeks! This rocks!! Christmas is 5 days away and after the holidays we may be meeting up with another OI family with a son about the same age as Reiko and a little girl around Kai's age! It should be exciting to meet people who go through the same things!!

The expected About me Post!

WELCOME!! So I am Jessica, 24 years old and wise beyond my years, at least I like to say that. I don't feel like a typial 24 year old, I feel much older, at least from everything we have been through this year alone. But we must go back before this year, you must get to know who I am. I am a small town girl, born and raised by my parents, always had impecable manners and was a pretty happy kid, aside from the bullying I endured in public school, but than again, who hasn't been there. I went into highschool in 2001 with a crush on pretty much any guy, but in December 2004 I talked to Derek in the hallways and everything changed, I had worked with him briefly in the summer and we had chatted alittle bit, but I never thought about him, until that December day when he asked me why I had quit..and it hit me, HARD, I fell for him that instant. When I had told my cousin who I liked, the one thing I said was "He is one guy  I am going to be with". A few months later we had our first date and we have been inseperable since. We both hate to admit it, but we are eachother's best friend, but ask us and we will denie it ha. We moved in together in September 2006, were engaged February 2007 and Married June 30 2007, had our first son Kai Dennis Q November 20 2007. The year was full to say the least. Being parents was easy to us, and so in the summer of 2009 we decided we were ready to have another baby and got pregnant right away we assumed everything would be fine, assumed being the key word. It all started in August, I was 7 weeks pregnant, when I had a horrible stomach bug type thing, I would bleed going to the bathroom (ahemm number 2) and had the worst stomach cramps since giving birth to Kai almost 2 years before. I went in expecting to be told we were losing our baby, but thankfully nothing was wrong with him and within a week the horrible bug went away. Come October my sciatic nerve was giving me hell at work and I knew I wouldn't be working much longer, it was at that doctors appt I said to my doctor I felt like something was wrong, and I was always worried about the baby, I knew something just wasn't right, he asked me why I had felt this way and I couldn't explain it, I said I never worried like this with Kai, but this time I just couldn't shake the feeling. He told me not to worry and that everything seemed fine. November came and I had a couple ultrasounds for the little man, and I was really starting to worry when they had me come in for another one about a week later saying they couldn't get all his measurments. A few days following the ultrasound I received a call from the doctors office telling me to get to the office right away. I was getting ready for work at the time and called in crying saying something was wrong with the baby, Derek and I hardly talked the whole way to clinic in another town about 15 minutes away. When we got there I was fighting my tears, they brought us in right away and told us that his long bones were measuring small..wheww what a relief we thought, if he is a little person no big deal. They sent us to a specialist a week later in a city over an hour away, they did an extensive ultrasound that day and then we waited 5 hours for them to get their results. The doctors then brought us into a room with 5 other specialists and explained to us that we were having a boy that either had a condition called Campomelic Dysplasia, which I learned was a fatal condition, or he had Osteogenesis Imperfecta, but did not think he had OI since his bones looked great. December was a very long month as I had looked up the conditions and found out what they meant and we wanted to know if the worst was about to happen to us. In January the doctor confirmed that they believed he had Campomelic Dysplasia and if he lived for the birth he would die shortly afterwards, they also thought he had a heart condition that would need surgery if he did live. Derek and I were devastated, we didn't really talk to Kai about his little brother anymore, we didn't buy anything for the baby, at 4 months pregnant we bought our first set of diapers since we had thought we made it past the first trimester, but we refused to buy anything else in case we didn't come home with a baby. February after new ultrasounds a echo on his heart we were told that he did not have a heart condition and that they didn't know what was wrong with him, but he was going to be okay. For the first time in months  we came home and talked about Kai's little Brother, it was wonderful. My due date came and went (March 22nd) and 2 days later on Derek and I's 8 year anniversary of being together Reiko Roy Q was born weighing 7lbs 2oz and 19 inches long. They sent him to the NICU to be assessed, we thought everything was okay, until about 3 hours later when we went to see him in the NICU we were told he has Osteogenesis Imperfecta type 3, he has 7 fractures, some healing and some new from the birth. We were once again devastated. He spent the first 5 weeks in the NICU then we were able to bring him home finally, on a feeding tube, but otherwise he was healthy! We went to Montreal Shriners Hospital for his first treatment 4 days later and we go every 3 months now, for a biophosphanate to help slow the degeneration of his bones. At 9 months old he has had 62 fractures including all his compression fractures and rib breaks, as well as the long bones. We have been in and out of the hospital since August with penumonia, which seems to act up every 2 weeks.

Most people would think this would make the marriage harder, but if anything, Derek and I have become stronger, closer, and more understanding of eachother. We get eachother through the hardest moments and I am so unbelieveably lucky to have him for a husband! And Kai loves his little brother so much and is generally very careful around him, he still has those 3 year old moments where he seems to forget and takes our breath away, but he is amazing with him. He talks to him, kisses him, hugs him and is the best big brother ever. That is all for now. Next week I start my curves carbohydrate sensitive diet, and I will keep you updated on how "happy" it will make me lol, I have 60lbs to  lose....lets hope Reiko can stay out of the hospital and help me lose this weight! :)