my heart is so sad

Reiko is in terrible pain, we are here at London Hospital, he is hocked up on morphine and valium, and he is just not himself. He has a broken femur, 2 breaks in the tibia and ankle fracture all on his left leg. his left arm is also broken as well, but he can move it and it is out of a splint. I don't exactly know how all the breaks happened, I do know he jerked while changing his diaper on the 26th and was inconsolible since then. Any touch, movement anything he would let out the most heartwrenching cry I had ever heard. These screams were unlike anything Derek and I had heard from him before, these were different, these were really bad. That whole night he was up, crying, would pass out from the pain but never for very long, even with strong pain meds.In the morning, Derek sat with him for 2 hours while I got a quick nap in, I wanted to be ready for the day, and as long as he wasn't moved he was fine. When I woke up we went to Clinton Emerg, and had some xrays done, were there about 4-5 hours, then was told to come to this hospital, we waited in Emerg here for about an hour, and the ortho doctor said they would do a Spica cast the next morning, and we were being admitted.

Thankfully we didn't have to wait long for a room to be available, and by 8pm we were in a isolation room since he also has rosalio infentago right now too, pure luck this boy! They hooked up his IV port and started him on IV morphine, which has kept him pretty loopy since. He only cries when he flinches or is picked up for diaper changes. Today his orthopedic Doctor came in to say she did not want to do a spica cast, as it would be dangerous for his bones, so they are custom making a cast type thing for him, it will have velcro straps on it, and can be removed for baths and such! which is a big relief. It will be done this afternoon, and then as far as I know we will still be here for another night. always fun when you have no clothes or anything. But thankfully I had a shower this morning, so I don't feel so yucky. I just wish there was better food. I will keep everyone updated as we go. hopefully this nightmare is almost over and he will not have to go through anymore pain.

on the news

Our family will be on the local news tonight, A channel London, if anyone is interested. I will try to put it up on here tonight, I am going to videotape it with my webcam.

update: here is the video!

Last weekend we had people come to port Albert to help us make our submission tape, well over 100 people showed up! It was amazing, and definitely made us emotional! We are soo lucky!! Here are some more pictures from the day!

 The bus picture!

 Lots of people there to support us! You all are amazing!

 Derek, my sister and her daugther Alyssa and my mom holding pictures of Ty Pennington! Everyone was holding them up for the video!

 This is the bus we used as a prop, everyone yelled out "BUS DRIVER MOVE THAT BUS" just like the show, and when our friend Pat who owns it pulled away there was our family, and we said "HI WE'RE THE QUINLAN FAMILY, IM JESSICA, IM DEREK AND THESE ARE OUR TWO BOYS KAI AND REIKO!!" and some more too, lol.

Derek and I were waiting for the bus to move so we could say our part, Reiko was not happy that day, he wasn't feeling well and it was really windy and cool that day!

We have been in the local papers every week for about a month now and next week when we finish up our filming of the application process we will be interviewed by a news channel (A Channel News)! I really have to make sure the house is spotless now lol. Life has been absolutely amazing! I am so happy. I am starting to look into finding a part time job that is flexible for Reiko's needs, but I think it may be hard to find people understanding of the time I would need off, but we are getting to the point where we need the money and honestly I just need to have some time for myself. Reiko has been doing better, still has his left- leg wrapped from his break about a week ago. But he is a trooper and has been rolling as much as he can. Ok that is all! Hope you enjoy the pics!! ohhh wait! I gotta show you Kai's daycare pictures!! OMG!! They are adorable!!

When it rains...

You know how it goes...

Kai fell on Reiko this morning, he is excited to see Grandma and was walking backwards talking and he fell on Reiko who was in his bouncy chair. Kai instantly knew he had hurt him and it broke my heart as he kept saying "I'm so sorry mommy, I'm so sorry Daddy" It breaks my heart that he has to know that he can cause him fractures. Reiko was crying very hard, Kai landed on his already broken leg, so I gave Reiko a bath and he was instantly happier, I made it full enough for him to just float his legs,and he felt better. I then gave him diazapam to control any spasms he might endure while I wrapped his leg up. It was his first time being given that, he was loopy within a few minutes. He handled the splinting well and then had a nap, he is now sleeping in our room at night in his play pen cause their room is much to warm, and we installed the air conditioner today. I think I may look into getting a a/c for their room, there are ones out there that do not need to go in the window and I think that would be good for them. My mom is taking Kai for the night so that will make things easier tonight. Its scorching hot right now, one of the things I hate about summer. I don't think Reiko likes it either. I cannot imagine being covered in ace wraps all the way from your foot to your chest in this heat...ughhh...He is quite grumpy because we are not moving him much, trying to keep in comfortable because moving him still hurts him, he doesn't understand it though and just thinks we wont pick him up, and when I do pick him up he is still grumpy...this OI is a horrible disease and its the days when he does go through everything that I can't believe our lives turned out this way. Thankfully I do have this amazing support system of other OI parents who go through this everyday as well, and then the people in our lives who just love us through it all. Thank you to everyone who is there for us and makes it easier.

My weight loss has been awful, I gained back everything I lost, I hardly work out, my eating is crap and I feel so lost with it. I was doing amazing and then it just stopped and I don't know why I can't get back into it. I am very disappointed in myself, and I feel like I must look disgusting to my husband, let alone other people. We went to the beach yesturday and it didn't make me feel to any better.

Kai is sitting beside me right now, and my heart is just feeling overloaded with love...its funny how he can drive me freaking batty, but one look at him and I am just over the moon.

Ok have a good one. Take Care
Jessica

It's back..

2 breaks in one week. Poor Reiko. It started last saturday, we were at a birthday party for another little boy with OI named Oliver, it was his first birthday.Natalie and I had the boys on the ground on their tummies and Reiko let out the cry, I didn't know it was broken for 6 hours, he didn't really cry, he was grumpy and had tears in his eyes all day, but he didn't complain, later that night Derek was taking off his shirt and he cried hard, so I wrapped it up, then tonight he was in his bouncy chair and looking behind at us and then there was a big CRACK and then the scream, it had to be bad with how loud it was. I  called Derek at the gym so he came home and I took Reiko to the ER, About an hour or so later, the doctor came in and asked me if I wanted XRAY's for him, and I so I asked him if getting the xray would change anything anyways, and he said no, so I decided that I was not going to put him through the torture of xraying his leg, when it is clearly broken. So I splinted it and we came home. he is in bed now sleeping, has already woken up once needing morphine, it will probably be a long night. I feel awful for him, but he handles it so well. When we were at the hospital I had him on my chest leaning back and he would lift himself up and give me big kisses and laugh while shaking his head back and forth. He is so strong. He also had a CT SCAN last Friday for the mass in his lungs, we will find out this week or next week what they think it is. Its been a rough week for him...

This sunday we are going to be filming in Port Albert for the Extreme  Makeover: Home Edition, we are making the submission tape, and hopefully there will be alot of people in Port Albert to be in the video. I am nervous about taping lol.

Ok thats all for tonight, Kai is great, he is loving this heat lol. Derek is great! I'm good! Take Care!
Jessica