Sunday, December 19, 2010

The expected About me Post!

WELCOME!! So I am Jessica, 24 years old and wise beyond my years, at least I like to say that. I don't feel like a typial 24 year old, I feel much older, at least from everything we have been through this year alone. But we must go back before this year, you must get to know who I am. I am a small town girl, born and raised by my parents, always had impecable manners and was a pretty happy kid, aside from the bullying I endured in public school, but than again, who hasn't been there. I went into highschool in 2001 with a crush on pretty much any guy, but in December 2004 I talked to Derek in the hallways and everything changed, I had worked with him briefly in the summer and we had chatted alittle bit, but I never thought about him, until that December day when he asked me why I had quit..and it hit me, HARD, I fell for him that instant. When I had told my cousin who I liked, the one thing I said was "He is one guy  I am going to be with". A few months later we had our first date and we have been inseperable since. We both hate to admit it, but we are eachother's best friend, but ask us and we will denie it ha. We moved in together in September 2006, were engaged February 2007 and Married June 30 2007, had our first son Kai Dennis Q November 20 2007. The year was full to say the least. Being parents was easy to us, and so in the summer of 2009 we decided we were ready to have another baby and got pregnant right away we assumed everything would be fine, assumed being the key word. It all started in August, I was 7 weeks pregnant, when I had a horrible stomach bug type thing, I would bleed going to the bathroom (ahemm number 2) and had the worst stomach cramps since giving birth to Kai almost 2 years before. I went in expecting to be told we were losing our baby, but thankfully nothing was wrong with him and within a week the horrible bug went away. Come October my sciatic nerve was giving me hell at work and I knew I wouldn't be working much longer, it was at that doctors appt I said to my doctor I felt like something was wrong, and I was always worried about the baby, I knew something just wasn't right, he asked me why I had felt this way and I couldn't explain it, I said I never worried like this with Kai, but this time I just couldn't shake the feeling. He told me not to worry and that everything seemed fine. November came and I had a couple ultrasounds for the little man, and I was really starting to worry when they had me come in for another one about a week later saying they couldn't get all his measurments. A few days following the ultrasound I received a call from the doctors office telling me to get to the office right away. I was getting ready for work at the time and called in crying saying something was wrong with the baby, Derek and I hardly talked the whole way to clinic in another town about 15 minutes away. When we got there I was fighting my tears, they brought us in right away and told us that his long bones were measuring small..wheww what a relief we thought, if he is a little person no big deal. They sent us to a specialist a week later in a city over an hour away, they did an extensive ultrasound that day and then we waited 5 hours for them to get their results. The doctors then brought us into a room with 5 other specialists and explained to us that we were having a boy that either had a condition called Campomelic Dysplasia, which I learned was a fatal condition, or he had Osteogenesis Imperfecta, but did not think he had OI since his bones looked great. December was a very long month as I had looked up the conditions and found out what they meant and we wanted to know if the worst was about to happen to us. In January the doctor confirmed that they believed he had Campomelic Dysplasia and if he lived for the birth he would die shortly afterwards, they also thought he had a heart condition that would need surgery if he did live. Derek and I were devastated, we didn't really talk to Kai about his little brother anymore, we didn't buy anything for the baby, at 4 months pregnant we bought our first set of diapers since we had thought we made it past the first trimester, but we refused to buy anything else in case we didn't come home with a baby. February after new ultrasounds a echo on his heart we were told that he did not have a heart condition and that they didn't know what was wrong with him, but he was going to be okay. For the first time in months  we came home and talked about Kai's little Brother, it was wonderful. My due date came and went (March 22nd) and 2 days later on Derek and I's 8 year anniversary of being together Reiko Roy Q was born weighing 7lbs 2oz and 19 inches long. They sent him to the NICU to be assessed, we thought everything was okay, until about 3 hours later when we went to see him in the NICU we were told he has Osteogenesis Imperfecta type 3, he has 7 fractures, some healing and some new from the birth. We were once again devastated. He spent the first 5 weeks in the NICU then we were able to bring him home finally, on a feeding tube, but otherwise he was healthy! We went to Montreal Shriners Hospital for his first treatment 4 days later and we go every 3 months now, for a biophosphanate to help slow the degeneration of his bones. At 9 months old he has had 62 fractures including all his compression fractures and rib breaks, as well as the long bones. We have been in and out of the hospital since August with penumonia, which seems to act up every 2 weeks.

Most people would think this would make the marriage harder, but if anything, Derek and I have become stronger, closer, and more understanding of eachother. We get eachother through the hardest moments and I am so unbelieveably lucky to have him for a husband! And Kai loves his little brother so much and is generally very careful around him, he still has those 3 year old moments where he seems to forget and takes our breath away, but he is amazing with him. He talks to him, kisses him, hugs him and is the best big brother ever. That is all for now. Next week I start my curves carbohydrate sensitive diet, and I will keep you updated on how "happy" it will make me lol, I have 60lbs to  lose....lets hope Reiko can stay out of the hospital and help me lose this weight! :)



2 comments:

  1. Jessica, I'm Shannon and our boys were born about a month apart. My son also has OI, type 3. Reiko is beautiful, both of your boys are! Just wanted to say hi! Hope you have a happy holiday!

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  2. Jessica, I'm friends with Jaylee Blakeney, I started reading your blog and couldn't quit. what an amazing strong women you are, you may not feel like you are but in my mine you are. the boys are so cute, I'm sending blessings to your family. Stay strong, good luck with your heathy eating, and weight loss.I need to do that also. Best wishes to you and your family. Carol.

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