Thursday, February 9, 2012

Surgery postponed!

Reiko started getting a cough at night 2 days before surgery and so the surgery has been postponed til the 21st and 29th of this month, so 11 days away and hopefully the cough will be gone, he didn't cough last night so hopefully that is a good sign. He still had his Zole infusion and for the first time he had the energy burst I always hear people talk about, he was absolutely crazy hyper in my arms! I talked to Dr. Glorieux about switching treatments and he explained to me that until Reiko's leg's aren't bowed from the surgery he will keep fracturing them, and once the surgery is done we will really get to see how the treatment is working for him, so I agreed that after the surgery we will continue with the Zole for another year, and see if it makes a difference, if not then he agrees for us to try the PAM. It was a great time down there though, the first night around 9 another OI mom named Kyra came to our room and we finally met after a year of talking, she is a wonderful person and I hope to have a great friendship with her even if she does live so far away in B.C. Her Daughter Clairesse is soo cute! We also met the family from Nepal we have talked to for so long Durga and her son Animesh and he finally got his leg rodded. It was nice to have company while down there, it made it much more enjoyable! I hope that there will be more people there when Reiko has his surgeries. Reiko is so happy and comfortable since having his treatment, he just seems so much more lively right now, its wonderful. I was happy to be able to come back home to Derek and Kai early and now I think I am prepared for next time we head down, but I am not bringing nearly the same amount of stuff  lol, those bags were heavy! And we figured out that next time we will be taking the train home so his hippo carseat will for sure fit. Things are going to run smoothly, I just know it.
Jessica

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