Exciting and scary news!

First things first, Reiko had a bad fracture in his Right leg the other day, Derek was holding him and said all he did was switch hands, nothing unusal, and he heard a loud snap, not good at all. He had a rough couple days, lots of meds and very little movement, it was hard because changing his diaper was hell and even lifting him for any reason at all was pure torture on him. He is finally over the hump and last night he pretty much slept through the night and without meds, today he is doing great and hopefully that will be the end of the pain. Now onto the exciting news...

Reiko is getting both legs rodded in Montreal by Dr. Fassier Feb 9th and 21st (one leg each surgery) both his femurs and tibia's will be rodded. It is very exciting that he is going to finally get these rods and hopefully they can help him with the constant fractures he has been having in his legs, and its scary because we will be gone from Derek and Kai for 3 weeks. I am doing it all on my own and that scares the hell outta me. I am alittle frustrated that I have to pack for 3 weeks and then when he gets his surgery we have to pack up everything in our hotel and bring it with us to the hospital for the 3-4 day stay and then bring it all back after he is outta the hospital, and then I can't figure out how I will grocery shop since I can't buy the food before hand and then after, I have to somehow bring Reiko to the grocery store, post op, and in the snowy streets. Last year when we had his treatment in February I had to get groceries and I had Reiko is his stroller walking down the street and the sidewalks were completely snow covered and they didn't clear them off at all, I am scared it will be like that again and it will just put him in so much pain. I have no idea what I am going to do and I am stressed out to say the least. The hardest part about dealing with this disease when you have two children is when I need my husband the most, he can't be there, and that is hard, because these surgeries have me really scared about what to expect Reiko to go through. He is such a strong boy, but this is new territory. But at the end of the day, these surgeries are exactly what he needs, his left leg is so bowed and this is going to help him big time! I am also switching to the Pamidronate treatment after the surgeries, I do not know if the Zole has worked on him (slowing the degeneration of the bone, decrease bone pain, decrease fractures) because he is constantly fracturing, just last week 4 fractures in 10 days and 21 since October! He has had over 100 fractures and so I just need to try this other treatment and then if he is still this fragile then we know that its just his life and we have done everything we can to help him. I just pray that the other treatment will work. It's perfect timing for the surgeries to because this is Reiko's last treatment as part of the clinical study on zole for infants, so we at least finished the trial, we have to still go back in May for the final evaluation but thats it, then we go to Montreal once a year until he is in his 20's, we can get his treatments in the city an hour away now!

Kai and Daddy went to see the Monster trucks today with my brother in law and nephew, they left at 830 so they could go get their tickets and also a pit pass so they could actually go up to the monster trucks, I am sure they loved seeing them up close, the actual show isn't until 12, so I am sure the boys are driving them crazy lol. I hope they have a fantastic time. I have never been to a show before, but everyone says bring earplugs(they did) cause it is so loud.

This afternoon my best friend is coming over to watch Reiko for a while so I can go to another friend's house and get a psyhic reading, lol, I have been to lots before, maybe this one will actually get something right.

Ok thats all for today, take care everyone!

Here are some pics!

Right leg broken, Left arm broken

A few days before breaking his leg, Reiko wouldn't nap and for the first time passed out at supper lol



Kai hanging out in a tree!



Reiko saying "CHEESE"

The boys hanging out!

the beginning of January, his right shoulder and left arm were broken, he was in a straight jacket, which did not last long, had to take one arm out at least.

Kai doing an arm bar on daddy!



Reiko doing an arm bar on daddy!