So saturday night Kai, Reiko and I went to Oma's for the night so that Oma could drop off Reiko and I at the airport, well Reiko was up all night that night, maybe got 2 hours sleep broken up. Then we got up at 6, and drove to the airport. I checked in my bag and we waited an extra hour, our flight was delayed, and Reiko had a fever and was extremely grumpy, luckily when we got on the plane Reiko finally fell asleep. When we landed in Toronto we had an hour and half until the connecting flight, I figured I didn't want to spend any money so we went straight to our terminal to wait, I put Reiko on the floor to play but he wanted me so I picked him up, low and behold he vomitted all over both of us and the kicker? since I checked my bag for the first time ever, I didn't even think to grab extra clothes for us...well I went looking around the airport and finally found a little shop that had baby clothes, so I had to buy myself a sweater and Reiko some onesies plus a cloth just in case he got sick again, yea, his vomit cost us 80$ lol. He again slept the second flight and then we got to the hotel after a shriner picked us up and brought us to get some grocery shopping, they were wonderful people who went out of their way to pick us up on a sunday which they usually don't do. The rest of the night was uneventful, I unpacked and ate some chicken and veggies for supper, and Reiko and I both went to bed at 7, Reiko pretty much slept through the night. Monday morning we got up at 7 and headed down to Shriners to get his treatment. That is when the nurses and doctors noticed Reiko's new port was infected...ya...great! So they could not use his port for his IV, so they tried it in his hands, feet, ankles, arms everywhere...they got an IV in but they couldn't get any blood from it and they could not do his treatment until they got the bloodwork. After heel pricks and finger pricks galore, more IV's etc they finally got enough blood. So he finally got his treatment after a very very long day, and we got back about 4pm from the hospital..by the way his treatment only takes 45 mins, and we got there at 730am. It was not meant to take all day. So we get to the hotel and have some supper, and then I go to put Reiko in his pjs and change his diaper and that is when I realise, They broke his left leg doing the IV, he never complained through all the sitting etc, so maybe it was on the verge and me changing him broke it, but the nurse said on wed that she may have heard it break when they got his blood, the one time that day I left the room because I couldn't bare to hear him go through it again...So I did a makeshift splint and called Shriners so they would be aware of us coming in to get properly splinted. That night he was up awhole lot, the next morning he had a huge fever of almost 104, and was just miserable. So we got him to his seat clinic to get fitted for the custom chair, and then we went to Shriners where they casted him and then sent us over to Children's Hospital, I was very very scared he had an infection from the port and it was going to his heart. Thankfully the hospital was wonderful and quick, some resident surgeons ended up freezing his port area and removing the port with me in the room and told us that it was not infected, but they still did blood work and xrays to make sure he was okay, his bloodwork came back normal and good, he did not have an infection for good. The doctors assume he has a viral infection and just keep with Tylenol etc. I met some amazing people yesturday, first a mom named Marie-Héléné and her son Kaleb, he has OI as well and is 3 years old, him and Reiko look alot alike and he is soo tiny and cute! Later after the hospital I visited with a lady named Janice that I met in August her daughter has Scoliosis, we chatted for a bit then Reiko and I came back and then I got to meet another OI mom named Patricia, and OMG! she is freaking gorgeous, she looks like a 25 year old model and she is 40! Lucky Lady! Her daughter Taylor is a typical cute teenager, anything you ask she says "I don't know" lol, they were wonderful though and they loved Reiko, of course lol. Today was a nice easy day, Reiko slept through the night again almost 12 hours! WOW!! I could get used to this! Then we went for breakfast at Nickels and I ordered this breakfast that I usually enjoy down here, crepes with hazelnut sauce and banana's. Delish! Then we looked around the mall for a while then came back to the hotel, next up was his final chair fitting, and it went great, his chair is going to be soo awesome! And I picked out royal purple for the colour, soo nice! Now we have been at the hotel and had a great night, I put on a face mask, redyed my hair black, and packed our bags. Tomorrow we will go home and I will finally get to see my boys, I miss Derek and Kai so much. Cannot wait to get my hug and kiss from them! Now it is bedtime and I am hoping for another full nights sleep from Reiko..but I am not holding my breath lol. Have a good night everyone.
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